Category: mental health

  • Autistic Overwhelm After a Stressful Day: It’s Not About the Cheeseburger

    Autistic Overwhelm After a Stressful Day: It’s Not About the Cheeseburger

    I wasn’t the best version of myself yesterday, and I’m having trouble letting myself off the hook for it.

    In the span of about 45 minutes, I lost my temper and spoke harshly to two separate service workers, and I’m deeply ashamed of my behaviour. I pride myself on treating people the way I want to be treated, with kindness, grace, empathy. I’ve spent most of my life trying very hard to be a good person.

    Yet in those moments, it was like I was outside myself looking in.

    I could feel my cheeks flushing, everything getting hot, my heart rate ramping up. My breathing changed. My thoughts…well, “racing” doesn’t even begin to cover it. I couldn’t hold onto them long enough to put two together coherently. Speaking in full sentences suddenly became difficult.

    And here’s the kicker: I lost it over such small, innocent things. Things that most people, and honestly even me on a good day, wouldn’t stress over at all.

    But in those moments, all my brain could perceive was:

    “Danger! Danger, Will Robinson!”

    I was ashamed immediately afterward. I apologized. More than once. Because neither person deserved that.

    But I still can’t let it go.

    And what I’m beginning to realize is this wasn’t really about McDonald’s or Walmart. This is part of a pattern that stretches throughout my entire life, one that has profoundly affected my mental health, my relationships, and the way I move through the world.

    Let me explain.

    Already Running on Empty

    Yesterday had already been a lot before the cheeseburger meal incident even happened.

    I was stressed about money because my car has been making a weird noise and I’m trying to figure out how to cover everything until child support and my next paycheck arrives. Kiddo has been dealing with some ongoing health issues that have been scary, complicated, and exhausting to navigate, and the doctor’s appointment we had just come from required me to do most of the heavy lifting and advocating yet again.

    If you’re a parent of a medically complex or neurodivergent kid, you know the drill. You walk in hoping someone will connect the dots, listen carefully, maybe even take some initiative…and instead you leave feeling like you just performed a one-woman TED Talk while simultaneously trying to remember symptoms, timelines, medications, and not sound “too emotional” while doing it.

    At the same time, Dad has been very ill for a long time now, and when he has a few bad days in a row, it can feel catastrophic. Mom is exhausted and emotional. I still had work waiting for me at home. The grass needed cutting. My brain already felt like a browser with 47 tabs open and one of them blasting music I couldn’t find.

    I’m also starting to realize just how much chronic stress and possible autistic burnout lower my ability to cope with even minor disruptions.

    The Cheeseburger Meal

    So we stopped at McDonald’s.

    Now, for context, kiddo is autistic and likes sameness. Predictability matters. We’ve been ordering the exact same meal for probably a decade. Literally.

    Extra Value Double Cheeseburger Meal.
    No onions.
    No pickles.
    Coke.
    Substitute poutine.

    Same order. Same McDonald’s half the time. Often the same employee.

    So when the employee suddenly asked, “Did you mean the McDouble?” my brain completely short-circuited.

    I said no, the Extra Value Meal, and she said she just wanted to make sure I got the right thing. Which was kind and reasonable. But suddenly I felt confused and flustered and overwhelmed all at once.

    Because a few years ago, at another McDonald’s, I had gotten into a weird argument where an employee insisted they didn’t have Extra Value Meals anymore even though I had literally ordered one there the week before. Another voice came over the speaker. They argued with me. I ended up ordering something different, then parked and went inside only to discover the Extra Value Meal still sitting there on the self-order screen like a tiny greasy monument to my growing insanity.

    So yesterday, that memory came flooding back instantly.

    And suddenly this wasn’t just:
    “Which burger did you want?”

    It was:
    “You’re confused.”
    “You’re wrong.”
    “The script changed.”
    “You’re not being understood.”

    I know how ridiculous that sounds written out. Trust me. But my nervous system did not interpret it as a minor inconvenience. It interpreted it as a threat.

    So I clarified I wanted the Extra Value Meal, and when I was answered with, “They’re all Extra Value Meals” I snapped back, “I’ve been ordering this same thing every day for five years, I know you have it.” 

    Side note: it was probably closer to ten years, but remember…confusion? Racing thoughts? Check and check.

    I’m learning that this kind of distress around sudden change and disrupted expectations is actually pretty common in routine disruptions in autism.

    By the time I got to the window, I had calmed down enough to apologize. I explained that kiddo is autistic and needs consistency, and the employee was actually lovely about it.

    But I drove away thinking:
    What the hell was that?

    Primed

    Then came Walmart.

    Now let me tell you something about Walmart self-checkout.

    I hate it.

    Every time I go, my anxiety increases exponentially.

    The bustle of people. The carts. The noise. The constant blips from every self-scanner going off at once. I can never tell which sounds belong to my machine and which belong to someone else’s. My brain doesn’t filter them out.

    And the heat.

    Oh my god, the heat.

    I struggle badly with overheating, especially when I’m stressed. It’s not uncommon for me to take off my coat and sweater while scanning groceries because I suddenly feel like I’m boiling alive under fluorescent lighting.

    And naturally, I have a system.

    Of course I do.

    I position the cart just so. Purse on the floor instead of in the cart because someone might take it. Coat off. Sweater off. Scan carefully. Check the screen after every item because with my luck, one won’t scan and I’ll somehow get accused of shoplifting, another weirdly intense fear of mine.

    I make little piles after scanning so I know what goes into which bag. Then I bag. Then I reload the cart. Then I double-check the screen. Then I pay.

    When I finally walk through those sliding doors into the parking lot and feel the breeze hit my skin, I have NEVER. BEEN. SO. GRATEFUL. to breathe outside air.

    Even if it’s a Walmart parking lot.

    I’m starting to realize how much of this was probably sensory overload mixed with hypervigilance and an already overloaded nervous system.

    So before the interaction even happened, I was already primed. My nervous system was already overloaded, and I still hadn’t recovered from our McDonald’s kerfluffle.

    Under Surveillance

    Then the scanner glitched.

    The first item scanned twice. No problem, I thought. Honest mistake. The employee came over, removed it, and then had to review the video footage to confirm what had happened.

    Which, rationally, I understand.

    But emotionally? My nervous system immediately clocked it as:
    You’re under surveillance.

    Then later, while scanning cat food, another item accidentally scanned twice. Again.

    Only this time, the machine froze and flagged an error. Before I even had time to explain, another employee was there reviewing footage again while I stood there trying to explain that I was literally holding four cans while the screen showed five.

    And I could feel the threat response escalating in real time.

    Not because anyone was actually accusing me outright, but because my brain had already shifted into hypervigilance mode.

    The first video review primed me.
    The second one confirmed the fear.

    By the time the employee kept insisting the scan was correct while I stood there counting cans in my hand like a sweaty, overstimulated Sesame Street character, something in me snapped.

    Not in a dramatic screaming way.

    But sharply.
    Harshly.

    “What are you not getting? I have four in my hand.”

    Even writing that makes me cringe.

    Then, because the universe apparently enjoys irony, the machine flagged me again while I was bagging my groceries. Another employee came over and explained the system had become confused by the placement of my reusable bag.

    At this point I was internally one blinking fluorescent light away from a full system shutdown.

    Later, as I was leaving, I found the first employee again and apologized.

    Because she didn’t deserve that either.

    The Shame Spiral

    But then came the shame spiral.

    And honestly? The shame spiral is the part I know best.

    Because this is what I do.

    I replay interactions endlessly in my head. I remember coaching moments from years ago where maybe I was too hard on a student. Not abusive. Not cruel. But maybe too intense. Too impatient. Too much.

    And I can’t let myself off the hook for it.

    Ever.

    My brain immediately jumps to:

    What’s wrong with me?
    Why can’t I control myself?
    Why didn’t I just say this differently?
    Why am I like this?

    And underneath all of it is this terrifying belief I’ve apparently carried my entire life:

    If I’m not perfect, I’m bad.

    Not imperfect.
    Not stressed.
    Not dysregulated.

    Bad.

    Monster-level bad.

    I’m beginning to realize how much rumination and black-and-white thinking have shaped my inner world.

    My Map Is Gone

    At the same time, I’m also beginning to realize that some of the things I thought were personal failings may actually be connected to being neurodivergent.

    Like how deeply routine disruptions affect me.

    For example, my mother sometimes tidies or reorganizes my things without asking. She means well. Truly. But it drives me absolutely insane.

    Why?

    Because I have a system.

    I know where things are. It may not look organized to anyone else, but it works for me. So when I go to grab medication or keys or paperwork and it’s suddenly been moved, it doesn’t just mildly annoy me.

    It disrupts the entire flow of my day.

    It feels like my map is gone.

    And if I’m already overwhelmed, that unexpected obstacle can feel enormous.

    The same goes for interruptions.

    If I’m hyperfocused on something and someone suddenly pulls me away from it, my reaction is almost physical. It feels jarring. Like my brain is being yanked out of one mode and shoved violently into another before I’m prepared.

    Apparently distress around interrupted hyperfocus is also pretty common in neurodivergent adults, which honestly made me feel both validated and mildly attacked.

    I used to think this just meant I was difficult. Anal. OCD. Controlling.

    Now I’m wondering if it’s something else.

    Maybe I’ve spent my entire life trying to manage an overloaded nervous system without understanding that’s what I was doing.

    Understanding vs Excusing

    And maybe that understanding matters.

    Not because it excuses hurting people.

    It doesn’t.

    I am still responsible for how I speak to people. Full stop.

    But maybe understanding the wiring underneath it all helps explain why some things feel so disproportionately overwhelming to me. Maybe it explains why I have to work harder than the average person to regulate myself when I’m overloaded.

    And maybe, just maybe, understanding that isn’t “playing the victim.”

    Maybe it’s finally learning to stop treating myself like a monster every time I struggle.

    I don’t have neat answers yet.

    I don’t know how to completely let myself off the hook while still holding myself accountable.

    I don’t know how much of this is autism. Or ADHD. Or stress. Or perimenopause. Or burnout. Or just being human.

    Probably all of the above.

    What I do know is this:

    I don’t think I was ever really angry about the cheeseburger meal.

  • Autistic Burnout at 57: Rethinking My Depression and Fibromyalgia

    Autistic Burnout at 57: Rethinking My Depression and Fibromyalgia

    AI tools were used to assist with editing, organization, and some visual elements in this post.

    I hear my friends talk about how good they feel when they wake up after a solid night’s sleep.

    Refreshed.
    Clear-headed.
    Ready for the day.

    And I always wonder… What does that actually feel like?

    Because I can count on one hand the mornings in my life where I’ve woken up feeling good.

    Most mornings are a battle.

    A battle against exhaustion.
    Pain.
    Anxiety.

    Often my body feels like it’s been hit by a truck. I wake up feeling just as tired—sometimes more tired—than when I went to bed.

    That “refreshed” feeling people talk about?

    Honestly? Fuck off with that.

    Because at this moment it feels like a taunt. One more thing I’m apparently not allowed to have in this lifetime.

    And in a sea of difficult mornings, this one hit monsoon proportions.

    Even my eyes hurt. The light was too much. My head, neck, and shoulders ached. My hands were claws because the flexors and extensors seemed to be at war with each other. My lower back was crying. My hip bones? Don’t even get me started.

    It took forever just to sit up.

    And yes, I used every bullshit motivational phrase in my fairly sturdy arsenal. (Add irritability to my list of symptoms). Thirty years of coaching gives you a decent toolbox.

    “You can do this.”
    “One small step.”
    “Just sit up first.”

    But no amount of self-talk made it easier.

    Because this wasn’t just a mindset problem.

    I’ve Been “Tired” Since I Was 16

    I was first diagnosed with depression at 16 or 17.

    At the time, my mom dragged me to the doctor because I was so tired I could barely walk up a flight of stairs.

    Showering? Exhausting.
    Walking? Exhausting.
    Thinking? Exhausting.

    And before anyone assumes I was out of shape—I was a competitive figure skater training 15–20 hours a week. I was in peak physical condition.

    Still couldn’t climb the damn stairs.

    Over the years, I’ve had depressive episodes. Some clearly tied to life events.

    A death in university.
    Failing a course twice.
    Leaving an abusive partner in the middle of the night in a city where I knew no one.
    Infertility.
    Fertility drugs that I was told wouldn’t affect me, even though I warned the doctor I’m sensitive. (Spoiler: they did.)

    After a concussion on the ice while pregnant (yes, I was teaching, don’t judge), then childbirth, things shifted again.

    Sleep deprivation.
    Single parenting.
    Starting over in a new town.
    Dog-eat-dog coaching culture.

    And then the body pain.

    Full-body soreness that didn’t feel like training soreness. Hands clawed in the morning. Joints feeling fused together. Like I was wearing a suit of armor.

    There were days the pain was so intense my teeth would chatter.

    Eventually, after being dismissed more than once, a sports medicine doctor looked at me and said, “This isn’t a sports injury.”

    I said, “I think it’s fibromyalgia.”

    She agreed. Referred me to a rheumatologist. I had a diagnosis within a week.

    Relief. Validation. Finally.

    There are good doctors out there.

    But as the parent of a neurodivergent kid in a small town? My faith still wobbles.

    So Why Am I Questioning Everything Again?

    Because now I’m 57.

    And I’ve recently acknowledged something else about myself.

    I’m autistic.

    Late to the party. But here nonetheless.

    I’m self-identified. Not formally diagnosed.

    And before anyone clutches their pearls — self-identification is valid in a community where many women can’t access assessment due to cost, waitlists, geography, or years of being dismissed. I’ve done the reading. The reflecting. The pattern-matching across my entire life. This isn’t impulsive. It’s informed.

    And once you look at your life through that lens? It’s like the whole timeline rearranges itself.

    Everything feels hard again.

    Showering is hard.
    Speaking and formulating thoughts is hard.
    Light is too much.
    Headaches. Nausea. Brain fog.
    Overwhelm from the smallest tasks.

    I know. I know. There are a million other things this could be.

    And I’ve been checked.

    But the more I read about autistic burnout—especially in adult women—the more I feel that uncomfortable little a-ha click in my chest.

    What if I haven’t just been depressed?

    What if I haven’t just had fibromyalgia?

    What if I’ve also been burning out my nervous system for decades?

    So What Is Autistic Burnout?

    Autistic burnout isn’t just being tired.

    It’s not “I had a big week.”
    It’s not “I need a vacation.”
    It’s not regular workplace burnout.

    Researchers describe autistic burnout as chronic exhaustion, reduced functioning, and decreased tolerance to sensory input following long-term stress and unmet support needs (Raymaker et al., 2020; AIDE Canada Toolkit).

    Translation?

    Your nervous system has been running on high alert for so long that it just… stops cooperating.

    Autistic adults actually named burnout first. Researchers later studied it and confirmed the pattern: long-term stress, masking, unmet support needs — and eventually a collapse in capacity (Raymaker et al., 2020).

    Burnout isn’t just exhaustion.

    It can look like:

    • Brain fog
    • Trouble speaking or finding words
    • Executive dysfunction that wasn’t this bad before
    • Sensory overload — light, sound, touch suddenly feel like too much
    • Loss of skills you used to manage
    • Increased anxiety
    • Shutdown

    It doesn’t always look like sadness.

    Sometimes it looks like:
    “I can’t.”

    And unlike regular stress, it doesn’t necessarily get better with a good weekend. It can last months, especially if the demands don’t change.

    Burnout vs Depression vs Fibromyalgia: Why This Is So Damn Confusing

    Burnout can look like depression.
    Depression can look like burnout.
    Fibromyalgia overlaps with both.

    Depression often includes:

    • Persistent low mood
    • Loss of interest or pleasure
    • Hopelessness
    • Emotional heaviness

    Autistic burnout doesn’t always include that deep hopelessness.

    It’s more like:
    “My system is overloaded. I don’t have capacity.”

    Fibromyalgia brings another layer:

    • Widespread pain
    • Tender points
    • Non-restorative sleep
    • Morning stiffness
    • Flare cycles tied to stress

    Studies show elevated rates of depression, chronic fatigue, and fibromyalgia among autistic adults, suggesting these conditions may overlap rather than exist in isolation (Altogether Autism; More Good Days; PMC8992921).

    Which means it might not be either/or.

    It might be all of it.

    A nervous system under chronic stress can express itself in mood.
    In pain.
    In shutdown.
    In exhaustion.

    Bodies are messy like that.

    A Kitchen Table Self-Check

    (Not a diagnosis. Just curiosity.)

    I am not diagnosing anyone.
    Hell, I’m barely diagnosing myself.

    But here’s a gentle gut-check to help me (and you) sort through this fog.

    You might lean toward autistic burnout if…

    • You feel chronically exhausted in a way that rest doesn’t fully fix.
    • Small tasks feel disproportionately hard.
    • Sensory things suddenly feel unbearable.
    • You’ve “lost” skills you used to manage.
    • Reducing demands helps more than motivational self-talk does.
    • You feel overloaded, not necessarily hopeless.

    You might lean toward depression if…

    • There’s a persistent low mood.
    • Things that once brought joy feel flat.
    • You feel hopeless or numb.
    • The exhaustion feels emotionally heavy.

    You might lean toward fibromyalgia if…

    • Widespread pain is central.
    • Morning stiffness is intense.
    • Sleep doesn’t restore you.
    • Your body feels like it’s wearing armor.

    And here’s the inconvenient truth:

    It might not be just one thing.

    The Cost of Being “Normal” for Decades

    If I’m autistic, then I’ve been adapting to a world not built for me for 57 years.

    That’s a long time to hold your breath.

    Masking works.
    Until it doesn’t.

    Research on late-diagnosed autistic women highlights decades of compensating and masking—often at significant psychological and physical cost (UCLA Health; Neurodiversity Centre).

    Masking isn’t just social camouflage.

    It’s energy expenditure.

    And energy is finite.

    Emerging discussions around autism and menopause suggest sensory sensitivity and burnout can intensify in midlife as hormonal shifts affect nervous system regulation (ScienceWorks Health).

    So maybe this isn’t random.

    Maybe this is cumulative.

    Maybe my nervous system didn’t fail me.

    Maybe it finally told the truth.

    Maybe I Was Never Just Depressed

    I was 16 and couldn’t climb stairs.

    I was diagnosed with depression.

    I was diagnosed with fibromyalgia.

    And maybe those diagnoses were accurate.

    But maybe they weren’t the whole story.

    Because when I look back now—as a 57-year-old, self-identified autistic woman—I don’t just see sadness.

    I see decades of adaptation.

    Of performing competence.
    Of tolerating sensory overload.
    Of managing social politics.
    Of caregiving without pause.

    Maybe the exhaustion isn’t weakness.

    Maybe the armor-body mornings aren’t laziness.

    Maybe the overwhelm isn’t a character flaw.

    Maybe it’s what happens when you run a brain and body in survival mode for half a century.

    I don’t have a clean answer.

    It might be depression.
    It might be fibromyalgia.
    It might be autistic burnout.

    It might be all of it.

    But if I’ve been interpreting neurological overload as personal failure for decades?

    That story ends here.

    And if you’re 40. Or 50. Or 57. And you’re waking up feeling like you’ve been hit by a truck—physically, mentally, emotionally—maybe you’re not broken either.

    Maybe you’re overloaded.

    And maybe the question isn’t, “What’s wrong with me?”

    Maybe it’s, “What have I been carrying for far too long?”

    Sources & Further Reading

    Raymaker, D. et al. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure”: Autistic Burnout.
    AIDE Canada. Autistic Burnout Toolkit.
    UCLA Health. Understanding Undiagnosed Autism in Adult Females.
    Neurodiversity Centre. Masking and Burnout in Autistic Women.
    Neurodivergent Insights. Autistic Burnout vs Depression.
    Attwood & Garnett Events. How Depression May Present Differently in Autistic People.
    Altogether Autism NZ. Chronic Fatigue, Fibromyalgia and Autism.
    PMC8992921.
    ScienceWorks Health. Autism and Menopause.