Tag: Anxiety

  • Autistic Overwhelm After a Stressful Day: It’s Not About the Cheeseburger

    Autistic Overwhelm After a Stressful Day: It’s Not About the Cheeseburger

    I wasn’t the best version of myself yesterday, and I’m having trouble letting myself off the hook for it.

    In the span of about 45 minutes, I lost my temper and spoke harshly to two separate service workers, and I’m deeply ashamed of my behaviour. I pride myself on treating people the way I want to be treated, with kindness, grace, empathy. I’ve spent most of my life trying very hard to be a good person.

    Yet in those moments, it was like I was outside myself looking in.

    I could feel my cheeks flushing, everything getting hot, my heart rate ramping up. My breathing changed. My thoughts…well, β€œracing” doesn’t even begin to cover it. I couldn’t hold onto them long enough to put two together coherently. Speaking in full sentences suddenly became difficult.

    And here’s the kicker: I lost it over such small, innocent things. Things that most people, and honestly even me on a good day, wouldn’t stress over at all.

    But in those moments, all my brain could perceive was:

    β€œDanger! Danger, Will Robinson!”

    I was ashamed immediately afterward. I apologized. More than once. Because neither person deserved that.

    But I still can’t let it go.

    And what I’m beginning to realize is this wasn’t really about McDonald’s or Walmart. This is part of a pattern that stretches throughout my entire life, one that has profoundly affected my mental health, my relationships, and the way I move through the world.

    Let me explain.

    Already Running on Empty

    Yesterday had already been a lot before the cheeseburger meal incident even happened.

    I was stressed about money because my car has been making a weird noise and I’m trying to figure out how to cover everything until child support and my next paycheck arrives. Kiddo has been dealing with some ongoing health issues that have been scary, complicated, and exhausting to navigate, and the doctor’s appointment we had just come from required me to do most of the heavy lifting and advocating yet again.

    If you’re a parent of a medically complex or neurodivergent kid, you know the drill. You walk in hoping someone will connect the dots, listen carefully, maybe even take some initiative…and instead you leave feeling like you just performed a one-woman TED Talk while simultaneously trying to remember symptoms, timelines, medications, and not sound β€œtoo emotional” while doing it.

    At the same time, Dad has been very ill for a long time now, and when he has a few bad days in a row, it can feel catastrophic. Mom is exhausted and emotional. I still had work waiting for me at home. The grass needed cutting. My brain already felt like a browser with 47 tabs open and one of them blasting music I couldn’t find.

    I’m also starting to realize just how much chronic stress and possible autistic burnout lower my ability to cope with even minor disruptions.

    The Cheeseburger Meal

    So we stopped at McDonald’s.

    Now, for context, kiddo is autistic and likes sameness. Predictability matters. We’ve been ordering the exact same meal for probably a decade. Literally.

    Extra Value Double Cheeseburger Meal.
    No onions.
    No pickles.
    Coke.
    Substitute poutine.

    Same order. Same McDonald’s half the time. Often the same employee.

    So when the employee suddenly asked, β€œDid you mean the McDouble?” my brain completely short-circuited.

    I said no, the Extra Value Meal, and she said she just wanted to make sure I got the right thing. Which was kind and reasonable. But suddenly I felt confused and flustered and overwhelmed all at once.

    Because a few years ago, at another McDonald’s, I had gotten into a weird argument where an employee insisted they didn’t have Extra Value Meals anymore even though I had literally ordered one there the week before. Another voice came over the speaker. They argued with me. I ended up ordering something different, then parked and went inside only to discover the Extra Value Meal still sitting there on the self-order screen like a tiny greasy monument to my growing insanity.

    So yesterday, that memory came flooding back instantly.

    And suddenly this wasn’t just:
    β€œWhich burger did you want?”

    It was:
    β€œYou’re confused.”
    β€œYou’re wrong.”
    β€œThe script changed.”
    β€œYou’re not being understood.”

    I know how ridiculous that sounds written out. Trust me. But my nervous system did not interpret it as a minor inconvenience. It interpreted it as a threat.

    So I clarified I wanted the Extra Value Meal, and when I was answered with, β€œThey’re all Extra Value Meals” I snapped back, β€œI’ve been ordering this same thing every day for five years, I know you have it.” 

    Side note: it was probably closer to ten years, but remember…confusion? Racing thoughts? Check and check.

    I’m learning that this kind of distress around sudden change and disrupted expectations is actually pretty common in routine disruptions in autism.

    By the time I got to the window, I had calmed down enough to apologize. I explained that kiddo is autistic and needs consistency, and the employee was actually lovely about it.

    But I drove away thinking:
    What the hell was that?

    Primed

    Then came Walmart.

    Now let me tell you something about Walmart self-checkout.

    I hate it.

    Every time I go, my anxiety increases exponentially.

    The bustle of people. The carts. The noise. The constant blips from every self-scanner going off at once. I can never tell which sounds belong to my machine and which belong to someone else’s. My brain doesn’t filter them out.

    And the heat.

    Oh my god, the heat.

    I struggle badly with overheating, especially when I’m stressed. It’s not uncommon for me to take off my coat and sweater while scanning groceries because I suddenly feel like I’m boiling alive under fluorescent lighting.

    And naturally, I have a system.

    Of course I do.

    I position the cart just so. Purse on the floor instead of in the cart because someone might take it. Coat off. Sweater off. Scan carefully. Check the screen after every item because with my luck, one won’t scan and I’ll somehow get accused of shoplifting, another weirdly intense fear of mine.

    I make little piles after scanning so I know what goes into which bag. Then I bag. Then I reload the cart. Then I double-check the screen. Then I pay.

    When I finally walk through those sliding doors into the parking lot and feel the breeze hit my skin, I have NEVER. BEEN. SO. GRATEFUL. to breathe outside air.

    Even if it’s a Walmart parking lot.

    I’m starting to realize how much of this was probably sensory overload mixed with hypervigilance and an already overloaded nervous system.

    So before the interaction even happened, I was already primed. My nervous system was already overloaded, and I still hadn’t recovered from our McDonald’s kerfluffle.

    Under Surveillance

    Then the scanner glitched.

    The first item scanned twice. No problem, I thought. Honest mistake. The employee came over, removed it, and then had to review the video footage to confirm what had happened.

    Which, rationally, I understand.

    But emotionally? My nervous system immediately clocked it as:
    You’re under surveillance.

    Then later, while scanning cat food, another item accidentally scanned twice. Again.

    Only this time, the machine froze and flagged an error. Before I even had time to explain, another employee was there reviewing footage again while I stood there trying to explain that I was literally holding four cans while the screen showed five.

    And I could feel the threat response escalating in real time.

    Not because anyone was actually accusing me outright, but because my brain had already shifted into hypervigilance mode.

    The first video review primed me.
    The second one confirmed the fear.

    By the time the employee kept insisting the scan was correct while I stood there counting cans in my hand like a sweaty, overstimulated Sesame Street character, something in me snapped.

    Not in a dramatic screaming way.

    But sharply.
    Harshly.

    β€œWhat are you not getting? I have four in my hand.”

    Even writing that makes me cringe.

    Then, because the universe apparently enjoys irony, the machine flagged me again while I was bagging my groceries. Another employee came over and explained the system had become confused by the placement of my reusable bag.

    At this point I was internally one blinking fluorescent light away from a full system shutdown.

    Later, as I was leaving, I found the first employee again and apologized.

    Because she didn’t deserve that either.

    The Shame Spiral

    But then came the shame spiral.

    And honestly? The shame spiral is the part I know best.

    Because this is what I do.

    I replay interactions endlessly in my head. I remember coaching moments from years ago where maybe I was too hard on a student. Not abusive. Not cruel. But maybe too intense. Too impatient. Too much.

    And I can’t let myself off the hook for it.

    Ever.

    My brain immediately jumps to:

    What’s wrong with me?
    Why can’t I control myself?
    Why didn’t I just say this differently?
    Why am I like this?

    And underneath all of it is this terrifying belief I’ve apparently carried my entire life:

    If I’m not perfect, I’m bad.

    Not imperfect.
    Not stressed.
    Not dysregulated.

    Bad.

    Monster-level bad.

    I’m beginning to realize how much rumination and black-and-white thinking have shaped my inner world.

    My Map Is Gone

    At the same time, I’m also beginning to realize that some of the things I thought were personal failings may actually be connected to being neurodivergent.

    Like how deeply routine disruptions affect me.

    For example, my mother sometimes tidies or reorganizes my things without asking. She means well. Truly. But it drives me absolutely insane.

    Why?

    Because I have a system.

    I know where things are. It may not look organized to anyone else, but it works for me. So when I go to grab medication or keys or paperwork and it’s suddenly been moved, it doesn’t just mildly annoy me.

    It disrupts the entire flow of my day.

    It feels like my map is gone.

    And if I’m already overwhelmed, that unexpected obstacle can feel enormous.

    The same goes for interruptions.

    If I’m hyperfocused on something and someone suddenly pulls me away from it, my reaction is almost physical. It feels jarring. Like my brain is being yanked out of one mode and shoved violently into another before I’m prepared.

    Apparently distress around interrupted hyperfocus is also pretty common in neurodivergent adults, which honestly made me feel both validated and mildly attacked.

    I used to think this just meant I was difficult. Anal. OCD. Controlling.

    Now I’m wondering if it’s something else.

    Maybe I’ve spent my entire life trying to manage an overloaded nervous system without understanding that’s what I was doing.

    Understanding vs Excusing

    And maybe that understanding matters.

    Not because it excuses hurting people.

    It doesn’t.

    I am still responsible for how I speak to people. Full stop.

    But maybe understanding the wiring underneath it all helps explain why some things feel so disproportionately overwhelming to me. Maybe it explains why I have to work harder than the average person to regulate myself when I’m overloaded.

    And maybe, just maybe, understanding that isn’t β€œplaying the victim.”

    Maybe it’s finally learning to stop treating myself like a monster every time I struggle.

    I don’t have neat answers yet.

    I don’t know how to completely let myself off the hook while still holding myself accountable.

    I don’t know how much of this is autism. Or ADHD. Or stress. Or perimenopause. Or burnout. Or just being human.

    Probably all of the above.

    What I do know is this:

    I don’t think I was ever really angry about the cheeseburger meal.

  • Pathological Demand Avoidance and Autism: A Quick Primer

    Pathological Demand Avoidance and Autism: A Quick Primer

    (Note: Chat GPT Assisted)

    “Autism”, “ASD”, and “PDA”. These aren’t just random abbreviations – they’re essential keys to understanding the vast, colourful world of neurodiversity. Dive into this guide and let’s decode the mystery behind PDA, all while keeping a sense of humour about it.

    Source: Pexels

    What the Heck is PDA (What, You Mean it’s Not a Public Display of Affection)?

    Let’s get our bearings straight:

    • PDA stands for pathological demand avoidance.
    • It’s a subtype of autism spectrum disorder (ASD).
    • PDA involves an extreme avoidance of everyday demands, often driven by high levels of anxiety.
    • A quick history tidbit: PDA was first identified in the 1980s by child psychologist Elizabeth Newson. (Yep, while you were busy rocking those leg warmers and mullets, science was making strides!)

    “Does My Kiddo Have PDA?” – Behaviours to Watch Out For

    Now, no two children are alike, and no, I don’t mean like snowflakes. More like, um, ice cream flavors? But here are some general signs:

    • Resistance to Ordinary Demands: Ever felt like you’re negotiating with a mini-diplomat just to get shoes on for school? This isn’t your typical child stalling. It’s an intrinsic need to resist routine tasks that most of us find mundane.
    • Comfort in Role Play: They might often take on roles or personas and communicate through them. Sherlock today, Spider-Man tomorrow! It’s not just play; it’s a coping mechanism.
    • Social Mimicry: They can often imitate others to mask their difficulties. This isn’t about being the ‘class clown’. It’s a way for them to fit in, making it sometimes hard to pinpoint. Crafty little beings, aren’t they?
    • High Levels of Anxiety: Their anxiety levels are more profound than the dread you feel when you accidentally like a picture from 2012 while stalking someone on social media. This can manifest in various ways:
    • School Avoidance: It goes beyond the occasional β€œI don’t wanna go!” It’s a deep-rooted fear or reluctance that makes school mornings seem like a scene out of an action movie – and for some chilldren, like mine, a horror movie.
    • Aggression When Anxious: Not just a temper tantrum. When they’re pushed to their limit, their fight-or-flight response might lean heavily on the ‘fight’. This could look like punching walls, throwing things, taking scissors to walls, pushing you, or screaming insults at caregivers.
    • Panic Attacks: Heart-wrenching to watch, these sudden bouts of intense fear can immobilize them. It’s not “attention-seeking” but a genuine overwhelming feeling they can’t control.
    • Self-Harm: Children with PDA often use self-harm, often as a grounding technique to take their mind off their tumultuous feelings of anxiety in their body. This could look like hitting their head with their hands, slapping themselves in the face, or beating their head agains a wall. It’s scary to watch, and can be deeply unsettling for both parent and child.

    Diagnosis: When Should You Seek Professional Insight?

    Your intuition as a parent is uncanny. If you’re feeling something’s up, trust your gut, and:

    1. Consult a Specialist: This usually starts with a pediatrician or a child psychologist.Don’t take “no” for an answer. Unfortunately, there are many medical professionals who don’t believe in PDA, and many who are just not familiar with it. This is where you need to do your own research mama, and go with spreadsheets and data in tow!
    2. Undergo Assessment: This can include observations, interviews, and specific PDA-focused questionnaires.
    3. Receive a Diagnosis: Now that you have a better understanding of your child’s challenges, it’s time to search for supports that fits their needs (and yours.) You’ll also need to arm yourself with information so you can adovcate with schools, coaches, and any other environments your child may need special accommodations in.

    Remember, it’s not about labelling but understanding and supporting your child through this journey.

    Treating PDA: No One-Size-Fits-All Here!

    Treatment is as unique as your child’s fingerprint or your secret cookie stash (oops, did I just spill the beans?):

    • Individual Therapy: Tailored strategies to cope with demands and anxiety.
    • Family Counseling: Because, let’s face it, we all need a bit of group therapy after those family board game nights.
    • Educational Support: Tweaking their learning environment to suit their needs, minus the unnecessary pressure.

    Tips for Navigating the Rollercoaster of PDA at Home

    Welcome to the ‘PDA Theme Park’. Hold onto Your Hats!

    Navigating the zigzaggy roller coaster that is PDA can be, well, quite the wild ride. But fear not! With a sprinkle of patience, a dash of creativity, and the following strategies, you can ensure the ride is smoother for both you and your young adventurer:

    • Pick Your Battles: Does it matter if they wear PJs to the supermarket? Hey, some celebrities have worn meat dresses to award shows, so PJs sound pretty haute couture to me!
    • Use Indirect Requests: Instead of the direct “Brush your teeth,” try a bit of playful challenge like, “Hmm, I wonder who can make their teeth shine the brightest?” Engage their imagination!
    • Establish Safe Spaces: Picture this – a cozy nook with fluffy pillows, their favorite book, and maybe a soft light. Everyone, especially our PDA champions, needs a sanctuary to retreat to when the world gets a tad too overwhelming.
    • Humor is Your Friend: When in doubt, laugh it out! Remember that time you tried to wear two different shoes to work? Yeah, life can be absurd. Sharing a hearty laugh can diffuse tension in a jiffy.
    • Negotiate Like a Pro: It’s not about manipulation; it’s a two-way street. Maybe it’s a compromise, or perhaps it’s letting them feel they have a say. “10 more minutes of play, and then we tackle homework. Deal?”
    • Keep it Low-Key: Sometimes, the fanfare and fuss can be overwhelming. Approaching situations calmly and without a ton of drama can often lead to more successful outcomes.
    • Collaborate with Your Child: Make them part of the solution. “Okay, so we need to do X. How do you think we should get it done?”
    • Find Their Motivation: Is there a toy, a story, or maybe a treat they love? Use it as a carrot (or maybe a cookie?). “Once we’ve tidied up, how about we read that new comic together?”

    These tips may not look like ordinary parenting, but your child is extraordinary, so these special tips will help them (and you) get stuff done with less head-butting and more hugs.

    Wrapping Up: From PDA to BellaZinga!

    Speaking of understanding and celebrating neurodiversity, have you heard of BellaZinga? Inspired by a brilliant girl named Bella who dazzles on the autism spectrum, our online store uses printable merch and educational materials to promote the inclusion, acceptance, and celebration of the true spirit of neurodiversity. Need a touch of inspiration or just a sprinkle of awareness in your life? Swing by BellaZinga and let some neurodivergent light shine on you!

    P.S. While you’re there, maybe grab a little something. Who says advocacy can’t be stylish? πŸ˜‰πŸŒŸ

  • Walking a Tightrope Between Parent of a Child with ADHD and Dance Mom

    Walking a Tightrope Between Parent of a Child with ADHD and Dance Mom

    I always knew my daughter was different, right from the womb. Not better or worse, just different. People tried to normalize her activity level, her issues with socialization, and her fears as “all kids have fears” but I knew she was different right from the get go.

    So now that we have a formal diagnosis of ADHD and anxiety, I am in the process of deciding whether to medicate for the ADHD symptoms, which is a dilemma in itself. ( I am convinced she is also gifted, and there may be other learning issues, but as we don’t have benefits there is no way I can afford a psycho-educational assessment right now.)

    I am a single parent. I work three jobs and home school my daughter because attending normal school became untenable….she suffered bullying and difficulties through out her first three years into grade 1, so much so that her physical symptoms of school avoidance, tummy aches, nightmares, outbursts, and constipation were dominating our lives.

    WHEN YOUR 5 YEAR OLD DAUGHTER STARTS TO TALK ABOUT KILLING HERSELF BECAUSE SHE WILL NEVER HAVE FRIENDS AT SCHOOL, YOUR HEART SHATTERS.

    But, I did my best to manage the symptoms of anxiety, because through junior and senior kindergarten, she was described as a “rock star” by her teachers, so I saw that there was value from her attending school.

    I should have known not to get complacent.

    Within a month of starting grade 1, my amazingly brilliant child who I couldn’t keep up with at home in regards to her curiosity and thirst for knowledge was suddenly behind in everything when the education style moved from learner driven to curriculum driven in grade 1. Suddenly, over the course of one summer, she went from being a “rock star” to being behind in every subject.

    It’s been a bumpy, ride, and I couldn’t love my daughter more. She is brilliant, and funny, and a true performer, and a caring and sweet little girl.

    But, she is exhausting. And I feel guilty for feeling exhausted by her…it’s a never ending cycle…lol. ( I laugh because if I cry I will never stop, and laughing is better)

    Today, I’d like to talk about my current dilemma in our neuroatypical saga.

    Photo by Skitterphoto from Pexels

    My daughter is a competitive dancer, and here’s my concern. We have been been four years at the same dance studio. She has been competing on the performance group for 3 of those years. She has been a performer from birth and she shines when she is in the spotlight.

    I have also found that she does better socializing in her dance group because they are all there for a common goal and they have constant direction in their lessons, so it is easier for her to read social cues and navigate the landscape.

    Not to mention the outlet for her creativity and energy is a godsend.

    But there are issues. My daughter is hypersensitive, and always has been. Things that would not bother other kids will bring her to tears and she will fixate on them for weeks.

    Several of her instructors give feedback in ways that I do not deem appropriate.

    Now, a little background on me. I am a national level figure skating coach with a degree in Kinesiology. I have been coaching for 30 years and my life’s work has been all about learning how to teach young students, and how to give feedback. I have lost count of the papers I have written and the other coaches I have mentored in terms of helping them learn how to coach young athletes, and I myself never stop learning and trying to better myself and how I teach my skaters.

    So I know what I am talking about when I see feedback given in a manner that is not conducive to building self-esteem.

    And I feel that these particular teachers need to be aware that some of their dancers are not good with always being told negative things with no positive to balance them, or being singled out publicly when they are corrected.

    This is hard to handle for a neurotypical athlete, let alone an athlete with my daughters issues.

    I have emailed constructive feedback, asking for some compromise in how feedback is given. I have also worked consistently with the studio in terms of sharing my daughters issues and her diagnosis. I have given them a wonderful website with a list of coaches strategies for working with athletes with ADHD and anxiety, and I have countless one on ones with the instructors. I have bought private lessons for my daughter to help her with the smaller details of dance and her focus (group lessons are hard for her due to so much going on).

    The problem is, nothing is changing. She still feels singled out. She still struggles with the way the instructors teach, and the studio is extremely disorganized. I can never be sure the information I give to the owner/director is being passed down to the teachers. Her private lessons were discontinued due to scheduling on their end, and despite repeated attempts to re-book, because my daughter loves them and they help her tremendously, nothing has been done.

    I know that this is likely to be an issue at most dance studios, because from my experience, most coaches are not well-versed on the differences between neurotypical and neuroatypical athletes. If we change studios, it becomes a 45 minute drive to find a new one, and I am already stretched to the limit.

    Photo by Alexander Dummer

    I’m at a loss. I feel like that parent that always has to advocate, and I catch myself wondering how much I have to help her to get accommodations for her issues and how much I should just tell her that there are always different kinds of coaches and you have to learn how to deal with criticism if you want to get better.

    To add insult to injury, the issue of feedback is only one of the many problems I have had where the teachers and instructors fail to heed my concerns about things that cause my daughter excess hardship in practice; things such as playing the music so loud that she has to cover her ears and cringe during practice and, yet, they still. won’t. turn. it. down.

    My daughter and I talk about the value of hard-work, goal setting, losing as an opportunity to get better and above all, enjoying the process and having fun ALL the time. I have gone to great lengths to show respect for the studio and all the teachers in front of her and use our conversations as a way to model good sportsmanship and coping skills, but secretly, I am fuming and feeling like the studio is utterly incapable of handling a special needs athlete.

    I’m really having trouble finding the balance between mom, coach and dance parent, and worse, I feel singled out, blamed and shamed every time I try to advocate for her. To be fair, I don’t think that is anyone’s intent, they do their best, but that is how it comes across to me.

    So I will continue to hold my arms out, and do my best to balance on the tightrope that is now my life, wavering back and forth between dance mom, coach, and parent of a special needs child.

    Do you have any stories to share about your neuroatypical child and the obstacles you’ve faced? Feel free to share in the comments!