Tag: neurodiversity

  • Pathological Demand Avoidance and Autism: A Quick Primer

    Pathological Demand Avoidance and Autism: A Quick Primer

    (Note: Chat GPT Assisted)

    “Autism”, “ASD”, and “PDA”. These aren’t just random abbreviations – they’re essential keys to understanding the vast, colourful world of neurodiversity. Dive into this guide and let’s decode the mystery behind PDA, all while keeping a sense of humour about it.

    Source: Pexels

    What the Heck is PDA (What, You Mean it’s Not a Public Display of Affection)?

    Let’s get our bearings straight:

    • PDA stands for pathological demand avoidance.
    • It’s a subtype of autism spectrum disorder (ASD).
    • PDA involves an extreme avoidance of everyday demands, often driven by high levels of anxiety.
    • A quick history tidbit: PDA was first identified in the 1980s by child psychologist Elizabeth Newson. (Yep, while you were busy rocking those leg warmers and mullets, science was making strides!)

    “Does My Kiddo Have PDA?” – Behaviours to Watch Out For

    Now, no two children are alike, and no, I don’t mean like snowflakes. More like, um, ice cream flavors? But here are some general signs:

    • Resistance to Ordinary Demands: Ever felt like you’re negotiating with a mini-diplomat just to get shoes on for school? This isn’t your typical child stalling. It’s an intrinsic need to resist routine tasks that most of us find mundane.
    • Comfort in Role Play: They might often take on roles or personas and communicate through them. Sherlock today, Spider-Man tomorrow! It’s not just play; it’s a coping mechanism.
    • Social Mimicry: They can often imitate others to mask their difficulties. This isn’t about being the ‘class clown’. It’s a way for them to fit in, making it sometimes hard to pinpoint. Crafty little beings, aren’t they?
    • High Levels of Anxiety: Their anxiety levels are more profound than the dread you feel when you accidentally like a picture from 2012 while stalking someone on social media. This can manifest in various ways:
    • School Avoidance: It goes beyond the occasional “I don’t wanna go!” It’s a deep-rooted fear or reluctance that makes school mornings seem like a scene out of an action movie – and for some chilldren, like mine, a horror movie.
    • Aggression When Anxious: Not just a temper tantrum. When they’re pushed to their limit, their fight-or-flight response might lean heavily on the ‘fight’. This could look like punching walls, throwing things, taking scissors to walls, pushing you, or screaming insults at caregivers.
    • Panic Attacks: Heart-wrenching to watch, these sudden bouts of intense fear can immobilize them. It’s not “attention-seeking” but a genuine overwhelming feeling they can’t control.
    • Self-Harm: Children with PDA often use self-harm, often as a grounding technique to take their mind off their tumultuous feelings of anxiety in their body. This could look like hitting their head with their hands, slapping themselves in the face, or beating their head agains a wall. It’s scary to watch, and can be deeply unsettling for both parent and child.

    Diagnosis: When Should You Seek Professional Insight?

    Your intuition as a parent is uncanny. If you’re feeling something’s up, trust your gut, and:

    1. Consult a Specialist: This usually starts with a pediatrician or a child psychologist.Don’t take “no” for an answer. Unfortunately, there are many medical professionals who don’t believe in PDA, and many who are just not familiar with it. This is where you need to do your own research mama, and go with spreadsheets and data in tow!
    2. Undergo Assessment: This can include observations, interviews, and specific PDA-focused questionnaires.
    3. Receive a Diagnosis: Now that you have a better understanding of your child’s challenges, it’s time to search for supports that fits their needs (and yours.) You’ll also need to arm yourself with information so you can adovcate with schools, coaches, and any other environments your child may need special accommodations in.

    Remember, it’s not about labelling but understanding and supporting your child through this journey.

    Treating PDA: No One-Size-Fits-All Here!

    Treatment is as unique as your child’s fingerprint or your secret cookie stash (oops, did I just spill the beans?):

    • Individual Therapy: Tailored strategies to cope with demands and anxiety.
    • Family Counseling: Because, let’s face it, we all need a bit of group therapy after those family board game nights.
    • Educational Support: Tweaking their learning environment to suit their needs, minus the unnecessary pressure.

    Tips for Navigating the Rollercoaster of PDA at Home

    Welcome to the ‘PDA Theme Park’. Hold onto Your Hats!

    Navigating the zigzaggy roller coaster that is PDA can be, well, quite the wild ride. But fear not! With a sprinkle of patience, a dash of creativity, and the following strategies, you can ensure the ride is smoother for both you and your young adventurer:

    • Pick Your Battles: Does it matter if they wear PJs to the supermarket? Hey, some celebrities have worn meat dresses to award shows, so PJs sound pretty haute couture to me!
    • Use Indirect Requests: Instead of the direct “Brush your teeth,” try a bit of playful challenge like, “Hmm, I wonder who can make their teeth shine the brightest?” Engage their imagination!
    • Establish Safe Spaces: Picture this – a cozy nook with fluffy pillows, their favorite book, and maybe a soft light. Everyone, especially our PDA champions, needs a sanctuary to retreat to when the world gets a tad too overwhelming.
    • Humor is Your Friend: When in doubt, laugh it out! Remember that time you tried to wear two different shoes to work? Yeah, life can be absurd. Sharing a hearty laugh can diffuse tension in a jiffy.
    • Negotiate Like a Pro: It’s not about manipulation; it’s a two-way street. Maybe it’s a compromise, or perhaps it’s letting them feel they have a say. “10 more minutes of play, and then we tackle homework. Deal?”
    • Keep it Low-Key: Sometimes, the fanfare and fuss can be overwhelming. Approaching situations calmly and without a ton of drama can often lead to more successful outcomes.
    • Collaborate with Your Child: Make them part of the solution. “Okay, so we need to do X. How do you think we should get it done?”
    • Find Their Motivation: Is there a toy, a story, or maybe a treat they love? Use it as a carrot (or maybe a cookie?). “Once we’ve tidied up, how about we read that new comic together?”

    These tips may not look like ordinary parenting, but your child is extraordinary, so these special tips will help them (and you) get stuff done with less head-butting and more hugs.

    Wrapping Up: From PDA to BellaZinga!

    Speaking of understanding and celebrating neurodiversity, have you heard of BellaZinga? Inspired by a brilliant girl named Bella who dazzles on the autism spectrum, our online store uses printable merch and educational materials to promote the inclusion, acceptance, and celebration of the true spirit of neurodiversity. Need a touch of inspiration or just a sprinkle of awareness in your life? Swing by BellaZinga and let some neurodivergent light shine on you!

    P.S. While you’re there, maybe grab a little something. Who says advocacy can’t be stylish? 😉🌟

  • Why We Judge

    Why We Judge

    I’ve been thinking lately about judgment.  What it is, how often we do it, WHY we do it to others, and how it makes us feel when others judge us.  The sad fact is, as a parent to a child with special needs, and in particular a neuro-diverse child where the disability is on the inside and not apparent from the outside, I have experienced more than my fair share of judgment.

    According to the great God Google, judgment is defined as “the ability to make considered decisions or come to sensible conclusions”.  I find this rather ironic, since more often than not, the conclusions made about single parents, and particularly single parents of children with ANY type of exceptionality contain neither consideration or common sense. 

    Judgment is not necessarily a bad thing.  Let’s face it, we make 1000 judgments a day just to stay alive and maintain a peaceful existence. We judge if we have enough time to make the light safely before it turns red, we judge what food is safe to eat in our refrigerator and what could have spoiled and therefore give us food poisoning, we judge if it is safe to go outside during a thunderstorm, and we judge if it is the right time  to ask our boss for that raise based on her mood that day.

    Thousands of judgments. Every day.

    These types of judgments are necessary for survival and the propagation of the human race, after all, 50,000 years ago, our prehistoric ancestors made the judgment:

    SABRE-TOOTH TIGERS=BAD

    RUNNING AWAY=GOOD

    ……..thus ensuring our existence today. Judgment is necessary for us to navigate the world we’re in and reduce stress.  Hopefully judgments allow us to relate to each other and foster healthy relationships with like minded people.

    Yet, the judgment on my mind is that other kind of judgment.  The malicious kind.  The kind where someone decides that they know better than you, despite knowing nothing about your circumstances, your history, or your challenges.  The type that makes you question yourself and your actions.

    You all know what I mean, because every one of you reading this has been the victim of this kind of judgment.

    I remember when my daughter was three.  She was very musically inclined, so I enrolled her in a musical exploration class in town.  The class was wonderful, mothers and fathers, sitting in a group with their toddlers, singing songs, pantomiming, marching, playing with numerous toys and instruments that had been strewn about.

    The instructor was also lovely, and made a point of asking parents not to interfere or “tell” our children what to do, but to simply model the songs and dances required and allow them to explore and determine what they wanted to do.

    During one exercise the toddlers were expected to sit on our laps as we sat in a circle singing a song.  For one particular part of the song, we were required to help the children jump up and down in front of us.

    The instructor asked for my daughter to demonstrate.  Now, I have always known my daughter had excessive energy, even from birth, she now has an official diagnosis of ADHD, anxiety, plus the possibility of giftedness with, I suspect, some sensory processing issues.  Needless to say, she was a handful, and I was doing the best I could to navigate and guide her behavior to the very best of my ability.

    So, when the instructor in this small musical gathering asked for my child to demonstrate the song and sit on her lap, I was nervous, but I did my best to follow her instructions about not getting too controlling.

    Well, my daughter jumped alright, even when she wasn’t supposed to.  I watched as this poor woman did her best to control my kamikaze munchkin as she pistoned up and down on her legs, alternating between crazy bursts of height and then collapsing and giggling like a rag doll in her arms.  I didn’t know whether to take my daughter from her arms or not; I was of course embarrassed (and slightly bemused) by her behavior. I was a spectator, frozen, wincing at my daughter’s antics, and not knowing what the teacher wanted me to do.  So, I watched, mortified, until the song was done.

    Hurriedly, I rushed in to grab my daughter from the red-faced and obviously frustrated teacher. I quietly mumbled, sorry, she has a LOT of energy. She took a breath, and very loudly, in front of everyone in the group declared. “You have GOT to learn to control her.”

    I sucked in my breath, stunned, holding my daughter and feeling assaulted. Everyone in the room was watching.  I could feel my cheeks getting red. 

    Keeping my cool the best I could, I said, “I control her quite well, thank you very much.”

    I’m sure the look on my face was something to see, because she immediately looked away and continued with the lesson.

    I left that class feeling worthless as a mother.  I had been judged and found wanting, and worse; I had been called out in front of my peers.  Even though intellectually I knew I had done the best I could to monitor and control my daughter’s behavior her entire life, all it took was one comment from someone who knew nothing about my daughter, or our struggles, to make me doubt myself.

    Where does this come from?  Why do we do this to each other?  I know I’ve done it, despite my best efforts. It’s easy to decide something about someone based on YOUR experiences and YOUR knowledge, and hard to actually take a SECOND to put yourself in THEIR shoes. Let’s face it, who has time to ask someone about their life experiences before making a split-second decision about their behavior? We are all guilty of passing judgment.

    According to Elizabeth Dorrance Hall, Ph.D., from Psychology Today, these judgments are termed “attributions” and are basically thoughts we have that help us explain the reason behind others behaviors.

    As we go through our day, we tend to form two different types of attributions:

    Situational Attributions, where we make allowances for a person’s situation as the cause of their behavior. This allows for some fluidity, as a person’s situation can change, and gives us permission to look more favorably on a person or judge them less harshly.

    Personality Attributions, where we see the person’s personality as being the cause of the particular behavior. This tends to be a more fixed attribute, after all personality doesn’t change much does it? (I won’t get into all of the different theories of personality here, it’s been a loooong time since my personality psych class)

    So far so good. 

    This makes sense, right?

    But the article goes on to explain some pitfalls we encounter because of our tendencies to create these attributions.

    It seems that with strangers, we tend to give more weight to their personality being a factor in their behavior rather than the situation they are in. Since a person’s personality is more fixed and less fluid than their situation, this makes for some pretty damning attributions being made about that person.

    Conversely, we tend to give more weight to the situational explanations or attributions for things than personality attributions when we are dealing with the behavior of friends and family.

    So, in plain speak, we tend to give our friends the benefit of the doubt….. strangers…. NOT SO MUCH.

    And from here it gets even worse. When we have already established negative personality attributions or causes for behavior from someone we do not know well, we tend to subconsciously look for further proof to validate our beliefs when we see them again. This is called “confirmation bias“, where we unconsciously look for things that “confirm our existing beliefs.

    Accordingly, we filter out good behavior that would allow us to make positive attributions, and only attend to negative personality attributes for poor behavior, which we see as fixed and unchanging. This then only solidifies our judgement of them and sets us up to only focus on negative or personality attributes in the future.

    And so, the vicious cycle begins.

    In short, we see what we want to see, to hell with the truth.

    This brings me back to two questions, why do we make judgments about others, and why has it been on my mind so much recently?

    • Well, for one, I lost a good friend of mine just recently over her judgment of me and my parenting.
    • That same week an acquaintance of mine on Facebook was brought to tears at a baseball game.  As a single mother, she finally felt her 12 year old was old enough to leave at her ballgame while she went for a run.  Upon return, she was openly and loudly lectured and berated by an official from the team.  Needless to say, she was devastated.

    Both of these cases involved people who made judgments before even attempting to put themselves in our shoes.

    In the case of my close friend, who has a loving husband, a great job, a steady and large income, and gets to be a step-parent with the help of her husband and the other parents they share custody with, she felt she could judge me and my parenting by spending two days with my daughter and I and only slightly understanding the challenges I was facing.

    It all came about after we had too many cocktails our final night together. She made the very generous offer of flying myself and her to Mexico on her dime the following month. I was very thankful and told her so, but I needed to look at our commitments, and figure out when I could find adequate child care for my daughter. In addition, since I’m a contract worker, I have to figure out where I can find other work to balance the time I take off so I don’t lose too much income.

    She couldn’t understand why I couldn’t just leave my daughter with my parents for 5 days, even though they are 75 and my daughter is a handful on the best of days. I calmly asked her if we could talk about it when we were sober, but she then hinted that I should fly my daughter across the country to her fathers house to stay with him. My daughter talks to her father often on the phone, but has not spent more than a weekend with him at any one time, and only once yearly at that, so I thought she would understand why I was hesitant to fly my special needs daughter across the country to stay with him.

    She was having none of my “excuses” as she called them. And it escalated from there. She started spewing venom at me that became more and more hurtful the longer her diatribe against me went on.

    In her eyes, I was a failure, trust me, she made it clear……she actually, flat-out called me a failure.  (I believe she also called me fat, and a waste.)  She asked what had happened to me.  She screamed that everything was about my daughter and my life had gone nowhere.  And she ended it with a drunken “fuck you and fuck your daughter.”

    I kid you not.

    I’m still in shock about the ferocity and aggressiveness of the encounter.  I have another friend as a witness to the whole exchange, and she was also stunned. 

    In the end, my decision was easy.  I have no room in my life for someone who can’t understand what it is like to be the single parent of a special needs’ child.  She can’t understand the decisions I have to make every day, the self-doubt I harbor, or the struggle it is to provide the kind of monitoring, mentoring and advocating you have to provide EVERY.DAMN.DAY to a child that is hypersensitive, anxious, and struggles with focus, self-regulation and executive functioning. 

    I was more concerned about my acquaintance on Facebook, and the unfair treatment she had received at the hands of someone who was supposed to be promoting all the values of youth sport like team-work, understanding, guidance, balance, and patience.  You see, I know this woman, and she is fully invested in her child.  I see how hard she works to provide for her child, and how much she cares.

    Most importantly, as a single mother myself,  I KNOW how hard it is to find the time for self-care. 

    For her to try to look after herself, to FOR ONCE put herself first, and then to have to face the very public tirade of shame she was subjected to is simply unacceptable.

    Moms and dads everywhere.  Let’s make a pact.  Let’s only allow people in our lives that refuse to pass judgement on others. And when we see someone having their darkest day, let’s shine some hope, and attribute their behaviour to difficult circumstances.

    Let’s offer a hand, a shoulder, and some hope, instead of being THAT person who simply puts others down.

    “He that is without sin can cast the first stone.” John 8

    Have you ever been the victim of unfair judgments?  Let me know in the comments section.

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